@heyloura more fingers crossed! I was diagnosed with CRPS last spring, and I'm doing so much better now. I think I'd rather have CRPS myself than watch someone I love suffer with it. I don't know much about pediatric CRPS, but I can point you at some adult success stories if your own spirits need lifting. Hang in there! It's not easy, but it's possible to recover.
@larissaking I'm sorry you had to deal with CRPS and I'm so glad that you are feeling better. It's hard, since I never want my kids to suffer, and 11 is hard enough without a chronic pain condition. As I understand it, pediatric CRPS is similar to adult CRPS, in terms of typical symptoms and presentation. But kids tend to have better outcomes with treatment. Especially a multifaceted treatment approach. I'd love any positive stories you could toss my way. We're dealing with the symptoms spreading to other limbs, from legs/feet to an arm. But on a positive note, she can get around without a cane now and is back to her dance class and playing outside!
@heyloura in my experience, symptoms spreading is a good sign. It’s solid evidence that there’s nothing wrong with the body, that the brain learned how to do this trick and it can also unlearn. Maybe that’s why kids tend to have better outcomes.
@heyloura playing and dancing are great! Dancing was a big part of my early recovery. It was fun, and helped my nervous system get over the fear of moving and putting weight on my feet.
@heyloura and here’s Dan Buglio talking about whether or not CRPS is curable. He says it absolutely is. I can find non-Dan sources too, but he’s one of my favorites and has helped me a lot. He makes it simple to understand what’s going on and how to undo it
